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Group Name Area represented Additional Information
Breathe Easy York

Health - Respiratory conditions across ages and genders

Patient group linked to The British Lung Foundation Run by patients/carers, professional staff support as and when requested. Offers support to patients and carers. Raises funds linked to the provision of respiratory equipment and patient comfort items.

CANDI

Parents/Children Health Specific

CANDI is a forum for parents and carers of disabled children or children with additional needs.

Cystic Fibrosis Trust

Health Specific:CF patients

National helpline directs people to the local Group.

Dementia Strategy Group

Health - Dementia

A strategy group for the Trust - carers/users attending the Group.

Equality and Diversity Group

Users and Staff

Group at the Hospital which includes users (LINks) and governors.

Eye Department Partnership Group

Carers/Outpatients/Health Specific

Patients, carers and health professionals meet to discuss service improvements for people visiting the Ophthalmology depts at York Hospital.

Haematology Support Group

Health Specific: Blood Cancers

A group to offer support and info to patients, families, carers with any form of blood cancer.

Head and Neck Support Group

HN Cancer Patients/Carers

Macmillan have been involved in the set up of the group by a representative attending the focus groups.

Lung Cancer and Mesothelioma Support Group

Health - Lung cancer/Mesothelioma

Provides support and information for patients with mesothelioma and lung cancer and their carers. Lung Cancer specialist nurses facilitate.

Maternity Services Liaison Committee

Health Specific:Maternity

Attended by user representatives, LSA and PCT commissioners, Health visitors, peer breast feeding supporters and Maternity staff (Midwives, Obstetrician, Paediatrician)

Older People's Liaison Group

Other - older peoples issues

Broad attendance from older peoples groups including Alzheimers, Age Uk, OCAY, Carers Centre, CYC, York CVS, LINk. Although the group is led by the Elderly Directorate the issues for older people are Trust wide.

Renal Patient and Carer Reference Group

Older People Carers Women Men Health - Nephrology - kidney disease


Stoma Care

Health - Stoma Care

Partners/Carers also invited.

Stroke Patient and Carer Group

Health - Stroke

Patient/Carer User Group. Raise public awareness of stroke. Suggest Ways to improve the service delivery. Advice on future Service Developments

Valuing People Health Group

Health - Learning Disabilities

CYC Group for Learning Disabilities with representation covering users, carers, providers.

York and District Cancer Partnership

Health Specific: Cancer

User of Cancer servies/Reps from 3rd Sector/Nhs/ Social Service Hospice aim to improve cancer care and User involvement.

York and District Pain Management Support Group

Patients/Supports Health Specific: Pain

Established to provide a community for people and their supporters suffering with long term pain that are or have been participants in the Pain Management Program or attend the Pain Management Clinic

York Breast Cancer Support Group

Women Health - Breast Cancer


York Coronary Support Group Trust

Patients/Carers/Health Specific: Heart patients

YCSGT has many additional social and sport groups and services, e.g exercise and swim classes and an art group

York Gynae Support

Women Health - Gynae Cancer

Informal gathering of ladies with gynae cancers. Meet in a relaxed and friendly atmosphere to share experiences.

York Limbless Support Group

Carers/Patients/Health Specific

Patient Lead and supported by the Amputee Service. Offer peer group Support.

York Orthopaedic Support Group

Patients/Health Specific: Ortho patients (particularly Joint Replacements)

Patient Centred group with talks, discussions and fund raising activities for the benefit of orthopaedic patients. (Meet at York Hospital Social Club).

York Prostate Support Group

Men Health - Prostate Cancer

Meetings in Cancer Care centre. Usually a variety of speakers.

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