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Data opt-out

Choose if data from your health records is shared for research and planning.

Your health records contain a type of data called confidential patient information.  This data can be used to help with research and planning. You can choose to stop your confidential patient information being used for research and planning.  You can also make a choice for someone else like your children under the age of 13.


What is confidential patient information?

Confidential patient information is when two types of information from your health records are joined together.

The two types of information are:

  • something that can identify you
  • something about your health care or treatment

For example, your name joined with what medicine you take.

Identifiable information on its own is used by health and care services to contact patients and this is not confidential patient information.


How the NHS use your confidential patient information

Your individual care

Health and care staff may use your confidential patient information to help with your treatment and care.  For example, when you visit your GP they may look at your records for important information about your health.

Research and planning

Confidential patient information might also be used to:

  • plan and improve health and care services
  • research and develop cures for serious illnesses

Your choice

You can stop your confidential patient information being used for research and planning.  If you're happy with your confidential patient information being used for research and planning you do not need to do anything.

Any choice you make will not impact your individual care.

You can change your choice at any time.  To find out more, or to make your choice please visit https://www.nhs.uk/your-nhs-data-matters/ or call 0330 303 5678.

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Patients Know Best

York and Scarborough Teaching Hospitals NHS Foundation Trust is now offering patients the opportunity to sign up to our new online service that gives you secure access to your health record from any smartphone, tablet or computer. It’s designed to improve your patient experience and access to NHS services and information. The service is provided in partnership with Patients Know Best (PKB).  Further information can be found on our website, including frequently asked questions.